perm filename OAHU1[4,KMC]1 blob sn#031623 filedate 1973-03-27 generic text, type T, neo UTF8
00100	REMARKS ON THE TREATMENT OF NONSPEAKING CHILDHOOD AUTISM AT
00200	THE FRIEDA FROMM-REICHMANN AWARD LUNCHEON, MAY 5,1973, HONOLULU.
00300	
00400			KENNETH MARK COLBY
00500	
00600	
00700		In searching through Frieda Fromm-Reichmann's publications  I
00800	could  not find any discussion of childhood autism and its treatment.
00900	However there is ample evidence in her papers and book that  she  was
01000	not  reluctant  to  take  on  difficult  problems and use imaginative
01100	methods. It is in  this  spirit  of  innovation  and  willingness  to
01200	undertake  the  hitherto  discouraging, that I would like to tell you
01300	something about a  computer-based  method  for  stimulating  language
01400	acquisition in nonspeaking austistic children.
01500	
01600		No one person invented  and  developed  the  method  I  shall
01700	describe.  Hence  let  me  first  acknowledge  my  indebtedness to my
01800	co-workers at Stanford University- Horace Enea, David Smith,  Malcolm
01900	Newey  and  Maxine  Colby,  each of whom has put years of effort into
02000	this project.
02100	
02200		We began about seven years ago with a working hypothesis  and
02300	two  well-known facts about childhood autism. The hypothesis was that
02400	nonspeaking child's primary difficulty lay in an inability to process
02500	symbols,  language being of course the most important symbolic system
02600	used in human communication. The  first  well  known  fact  indicated
02700	prognosis   was  highly  correlated  with  speech,  the  outlook  for
02800	nonspeakers being poor. The second fact was  the  common  observation
02900	that  these  children  played  for  hours  with machines but remained
03000	indifferent to interactions with people.
03100		There  is  now increasing evidence in the research literature
03200	supporting  this  hypothesis  of  a  primary  difficulty  in   symbol
03300	processing.  [Churchill,1972; Frith,1972; Hermelin and O'Connor,1970;
03400	Rutter, Bartak and Newman,1971]. A dysphasic or developmental aphasic
03500	child  also  has difficulty with language but he can acquire usage of
03600	other symbolic  systems  such  as  gesturing  and  drawing.  But  the
03700	nonspeaking  autistic  child  has  great difficulty with all symbolic
03800	systems, not just language.
03900		The  cause  of  this  condition remains unknown. Nowadays few
04000	experts in the field defend a strictly psychogenic etiology since the
04100	supporting evidence is weak and the disconfirming evidence is gaining
04200	in strength [Rutter et al.,1971]. Regardless of the  original  cause,
04300	if  we  believe  we understand the crux of the child's difficulty, we
04400	can try to devise a remedial treatment which takes advantage  of  the
04500	child's  fascination  with  machines.  Our  idea then was to create a
04600	machine a nonspeaking child could play with in which the play process
04700	involved the use
04800		The system we developed consists of a television-like  screen
04900	and  a  typewriter-like  keyboard in front of which the child sits or
05000	stands. There is no computer visible since it is located  in  another
05100	part of the building. Pressing a key on the keyboard causes a letter,
05200	word, phrase, or picture to appear on the screen accompanied  by  the
05300	sound  of a human voice saying the linguistic expression or something
05400	else which might interest a child. It is much like having  one's  own
05500	Sesame  Street to play with. But instead of being a passive recipient
05600	of what the television show provides, a child in our situation is  an
05700	active instigating agent who controls the machine. The merits of such
05800	a machine are that it is untiring,  predictable,  always  saying  the
05900	same  thing  the same way, never angry, never bored and controllable-
06000	properties which are notoriously lacking in humans.
06100		This   audio-visual-tactile   experience  is  directed  by  a
06200	computer program running on a PDP  6/10  time-shared  system  at  the
06300	Stanford Artificial Intelligence Project. The program is divided into
06400	games intended to provide a  child  a  variety  of  opportunities  at
06500	playing  with  and interacting with symbols. For example, in one game
06600	when the child presses the key showing the letter "H", an "H" appears
06700	on the screen and a voice says "H". In another game pressing this key
06800	produces a horse on the screen accompanied by the  sound  of  running
06900	hooves.  There  exist  over  1000 such experiences on the system. The
07000	games are organized at various levels of complexity and are  designed
07100	to  show  a child how English is put together from sounds and letters
07200	into words and expressions. The idea is that in playing he will begin
07300	to  copy  or  approximate the sounds he hears associated with what he
07400	sees on the screen. I shall not go into the details of the games here
07500	They   are   throughly   described   in   the  literature,[Colby  and
07600	Smith,1971]. Instead I shall try to  sketch  the  rationale  or  major
07700	principles underlying this approach.
07800		First, consider how normal children  acquire  language.  They
07900	are  not  taught  formally  as are adults learning a second language.
08000	Children are simply exposed to members of a linguistic community  and
08100	given   an   opportunity  to  explore  language  usage  in  everyday
08200	communication with other humans who encourage and  sometimes  correct
08300	them.  From  this exposure, exploration, and corrective feedback they
08400	come to associate the sounds and meanings  of  words.  They  come  to
08500	grasp  that  certain that certain sounds, human voice sounds, are not
08600	just sounds in themselves like wind in the trees, but that  they  are
08700	about something else, that is, they are symbolic.  Human voice sounds
08800	are perceptual invariants about other invariants.  Between  the  ages
08900	of  roughly  2  months and 4 years normal children spend thousands of
09000	hours listening, practicing and playing with language.  Mastery of  a
09100	language,  that  is getting most of it right, does not come until far
09200	into adolescence, if ever.  A normal child can make an interpretation
09300	of  expressions  he  has  never heard before.  A nonspeaking autistic
09400	child does not show this course of development.
09500	
09600	The problem is not simply the development of language skills but also
09700	the  acquisition  of  concepts  necessary  for a comprehensive enough
09800	model of how the  world  works,  especially  the  human  world.   The
09900	conceptual  or  cognitive  deficits  shown  by  nonspeaking  autistic
10000	children involve those concepts which are normally  acquired  through
10100	language  or  other  symbolizations.   Take  the  abstract concept of
10200	`danger'.  To prevent a child  from  becoming  hurt,  a  parent  must
10300	identify  certain  concrete objects and situations as dangerous until
10400	the child grasps the abstract concept of danger.  All  this  is  done
10500	linguistically and through pointing.  By way of language, objects and
10600	situations can be referred to and warned about even when they are not
10700	present,  and referred to without pointing when they are present.  An
10800	important socialization function of language is to  mark  off  for  a
10900	child  what  to pay attention to and what is to be done and not done.
11000	Many of the characteristics of autistic children,  for  example,  the
11100	lack  of  empathy,  can be viewed as a consequence of an inability to
11200	form  regular  conceptual  patterns  about  the  world  because   the
11300	necessary  concepts  acquired  through  language are absent or poorly
11400	developed. As one perceptive mother said about her autistic child, `a
11500	screw is not loose, a screw is missing'.
11600	
11700		A poorly developed ability to  process  symbols  has  further
11800	consequences  besides  conceptual deficits.  Without language a human
11900	has  no  awareness  of  being  aware.    He  lacks  the  ability   to
12000	self-monitor  and  to self-control by talking to himself.   He cannot
12100	use symbols reflexively, that is,  to  give  himself  orders  and  to
12200	comment on himself to himself.  Having language, a normal child comes
12300	to realize the self is really two which  can  talk  to  one  another.
12400	Finally  to  become  a  person, one must be recognized as a person by
12500	other  people  who  treat  you  as  if  you  had  self-awareness  and
12600	self-control.   This  recognition  is virtually impossible for a child
12700	without language skills and probably represents the greatest  tragedy
12800	in his life.
12900	
13000		Thus far I  have  spoken  of  autistic  children  as  if  the
13100	nosological label stood for a single homogeneous group.  Thirty years
13200	ago it seemed that night be the case.  Now it  appears  as  if  there
13300	exist  several  autistic  syndromes, none of which should be confused
13400	with childhood schizophrenia since  they  differ  in  onset,  course,
13500	symptoms,  family  history  and  prognosis.    There are speaking and
13600	nonspeaking autistic children.  Among the nonspeaking group there are
13700	those  whose  linguistic development is normal until some time in the
13800	second year when they lose their language abilities.  The other major
13900	group  are  those  children  who,  from  the start, have trouble with
14000	language, understanding little and  saying  even  less,  perhaps  one
14100	'mama'  or  `no'  a  year.     In  our  experience the most difficult
14200	problem  for  differential  diagnosis  lies  in  deciding  whether  a
14300	nonspeaking  child  suffers  from  dysphasia {developmental aphasia},
14400	autism or perhaps both.  Over time the correct diagnosis can be  made
14500	when  it  becomes  clear  that  the  dysphasic  child can mimic, draw
14600	pictures and signify greetings while the autistic child cannot.
14700	
14800		Taking  a  cue from the normal child who treats language as a
14900	toy, our first principle was that the  treatment  should  provide  an
15000	opportunity for exploratory play.  The treatment situation is not one
15100	of forced drill, instruction or training but one  of  play  with  the
15200	keyboard  and video display.  Operant conditioning methods reward the
15300	child with candy or food for his actions.  We do not, believing  that
15400	food  rewards  inhibit  exploratory  curiosity,  as has been shown in
15500	animals both by Harlow and by Nissen. From  our  own  experience  and
15600	that  of  workers  in  computer-aided  instruction,  food rewards are
15700	distracting and disrupting. Exploratory learning requires a situation
15800	which  invites  exploration,  and provides time, security and minimal
15900	interference by adults.
16100	
16200		In  each  of  the sessions the child has a `sitter', an adult
16300	whose main task is to sit and not interfere.  The  sitter's  task  is
16400	difficult,  especially  if he has been trained to DO things.  We want
16500	to give the child an opportunity to freely self-select those  symbols
16600	which interest him, rather than to have an adult instruct him or quiz
16700	him about those  symbols  which  he  `should'  learn.   The  sitter's
16800	behavior  is  crucial  to this treatment method if the spirit of play
16900	rather than drill is to be provided.  Of  course  the  sitter  offers
17000	social approval and encouragement when it is fitting.
17100	
17200	An  ideal treatment session results when the child is in a good mood,
17300	is interested in working the keyboard display, enjoys  imitating  the
17400	sounds  and is successful in getting the machine to do what he wants.
17500	The principle of success is important here because, in our view, many
17600	nonspeakers  have  given  up  on language.  They have failed over and
17700	over and hence withdraw from trying.  We do not let them  fail.    As
17800	one  normal  child  said  about  the  experience "It's fun, you can't
17900	lose".   There  are  students  of  autism  who  consider  nonspeaking
18000	autistic  children to be innately withdrawn from people and hence not
18100	acquiring language.  We feel it is the other way around; they have so
18200	much   difficulty  with  language  they  withdraw  from  people  who
18300	unwittingly flood and overwhelm them with  meaningless  noises.    No
18400	wonder  they  do  not call, address, ask or answer questions of these
18500	giants who immediately spout gibberish.  Autistic  children  are  not
18600	aloof  and  indifferent  to  all people -- only to those who talk.  I
18700	have often wondered if it is not eye-to-eye contact  they  avoid  but
18800	eye-to-a-mouth  which,  as  far  as  the  child  is concerned, simply
18900	jabbers.  If you say little or nothing  to  a  nonspeaking  child  on
19000	first meeting him, you will more than likely find him in your lap, as
19100	affectionate as any other child.
19200		As  with  any  treatment  method,  we  have had successes and
19300	failures.  Every  treatment  of  autism  has  reported  its  dramatic
19400	successes  with  one  or  two  children. What is needed are long case
19500	series before we can sensibly compare methods  and  decide  which  is
19600	more effective relative to the effort and cost required. Thus far our
19700	series of nonspeaking autistic children totals  17  with  13  of  the
19800	children  improved.  By  improvement  we  mean  that the child begins
19900	voluntarily to use speech for social communication. We do  not  claim
20000	the method results in normal language ability with full comprehension
20100	and correct articulation and grammar. Our aim is to kindle a  child's
20200	interest  in  using  speech,  to  get  him to try again and again, to
20300	catalyze his damaged or slow-developing natural process  of  language
20400	acquisition.
20500		Our non-random sample of 17 is too small to  arrive  at  firm
20600	conclusions  about  the  method. However our improvement rate at this
20700	point in time represents the best reported in  the  literature.  Some
20800	cautions  are  in order. Language improvement represents only a first
20900	step. These children still need a lot of help and have a long way  to
21000	go to reach whatever is their potential.
21100	
21200		Why   haven't   other   workers   tried  this  zero-risk  and
21300	potentially promising method?  Aside from the inertia which  all  new
21400	methods  must face, there are two reasons.   One is that everyone has
21500	his own preferred method  which  he  believes  in  and  may  wish  to
21600	improve.    The  other  involves  people's beliefs and misconceptions
21700	about computers. I have come across people with the following fantasy
21800	about  our  situation  --  that we have a small, cowering, bewildered
21900	child sitting in front of a towering bank of flashing lights {the New
22000	Yorker-cartoon  concept of a computer} while cold scientists in white
22100	coats observe him thru one-way mirrors.    They  say  "the  child  is
22200	already too interested in machines, he needs relations with people --
22300	you are making him into even more of a robot".   I hope from my brief
22400	description  you  can see this is a misconception of our situation.It
22500	may sound paradoxical, but some nonspeaking children can become  more
22600	human,  i.e.  become  language users, by way of a machine which talks
22700	and which they find more acceptable on their own terms than  they  do
22800	talking humans.
22900	
23000		A  more  realistic objection to computers is their cost.  Few
23100	people in the world have access to million dollar computers for  this
23200	sort  of  work.   But  a large computer is not necessary to carry out
23300	this method.   Mini-computers costing only a few thousand dollars are
23400	adequate.  It may be that we do not need a computer at all if someone
23500	found a way to rapidly random-access both sounds and  pictures.   We
23600	are investigating this possibility. Once we can get the unnecessarily
23700	Satanic image of the computer out of the picture , I hope others will
23800	join  us  in  discovering  more  about  this  technique  for treating
23900	nonspeaking autistic children.
24000	
24100			REFERENCES
24200	
24300	
24400	[1] Churchill,D.W.,1972. The relation of infantile autism and early
24500	       childhood schizophrenia to developmental language disorders
24600	       of childhood. Journal of Autism and Childhood Schizophrenia,
24700	       2,182-197.
24800	[2] Colby, K.M. and Smith, D.C., 1971. Computers in the treatment of
24900	       nonspeaking autistic children. In Current Psychiatric Therapies,
25000	       Masserman, J.H.(Ed.), Grune and Stratton, New York.
25100	[3] Fay, W.H., 1969. On normal and autistic pronouns. Journal of Speech
25200	       and Hearing,36,242-249.
25300	
25400	[4] Frith, U., 1972. Cognitive mechanisms in autism: experiments with
25500	        color and tone sequence production. Journal of Autism and
25600	        Childhood Schizophrenia, 2, 160-173.
25700	[5] Hermelin, B. and O'Connor, N., 1970. Psychological Experiments
25800	        With Autistic Children, Pergamon Press, London.
25900	[6] Rutter, M., Bartak, L. and Newman, S., 1971. Autism- a central
26000	        disorder of cognition and language? In Infantile Autism,
26100	        Rutter, M.(Ed.), Churchill Livingstone, London.